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Владислав из Ленинградской области стал одним из первых, кто получил уникальный препарат генной терапии «Элевидис». Закупить его удалось благодаря фонду «Круг добра».
Лекарство необходимо для лечения мышечной дистрофии Дюшена, а его стоимость составляет около 3 млн долларов.
На данный момент 50 детей из разных регионов России уже обеспечены лекарственным средством «Элевидис», которое было предоставлено фондом «Круг добра». В их числе Степан и Дмитрий из Санкт-Петербурга. Прием заявок на терапию препаратом продолжается.
Владислав из Ленинградской области стал одним из первых, кто получил уникальный препарат генной терапии «Элевидис». Закупить его удалось благодаря фонду «Круг добра».
Лекарство необходимо для лечения мышечной дистрофии Дюшена, а его стоимость составляет около 3 млн долларов.
На данный момент 50 детей из разных регионов России уже обеспечены лекарственным средством «Элевидис», которое было предоставлено фондом «Круг добра». В их числе Степан и Дмитрий из Санкт-Петербурга. Прием заявок на терапию препаратом продолжается.
"For Telegram, accountability has always been a problem, which is why it was so popular even before the full-scale war with far-right extremists and terrorists from all over the world," she told AFP from her safe house outside the Ukrainian capital. What distinguishes the app from competitors is its use of what's known as channels: Public or private feeds of photos and videos that can be set up by one person or an organization. The channels have become popular with on-the-ground journalists, aid workers and Ukrainian President Volodymyr Zelenskyy, who broadcasts on a Telegram channel. The channels can be followed by an unlimited number of people. Unlike Facebook, Twitter and other popular social networks, there is no advertising on Telegram and the flow of information is not driven by an algorithm. Under the Sebi Act, the regulator has the power to carry out search and seizure of books, registers, documents including electronics and digital devices from any person associated with the securities market. On February 27th, Durov posted that Channels were becoming a source of unverified information and that the company lacks the ability to check on their veracity. He urged users to be mistrustful of the things shared on Channels, and initially threatened to block the feature in the countries involved for the length of the war, saying that he didn’t want Telegram to be used to aggravate conflict or incite ethnic hatred. He did, however, walk back this plan when it became clear that they had also become a vital communications tool for Ukrainian officials and citizens to help coordinate their resistance and evacuations. Meanwhile, a completely redesigned attachment menu appears when sending multiple photos or vides. Users can tap "X selected" (X being the number of items) at the top of the panel to preview how the album will look in the chat when it's sent, as well as rearrange or remove selected media.
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