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Владислав из Ленинградской области стал одним из первых, кто получил уникальный препарат генной терапии «Элевидис». Закупить его удалось благодаря фонду «Круг добра».
Лекарство необходимо для лечения мышечной дистрофии Дюшена, а его стоимость составляет около 3 млн долларов.
На данный момент 50 детей из разных регионов России уже обеспечены лекарственным средством «Элевидис», которое было предоставлено фондом «Круг добра». В их числе Степан и Дмитрий из Санкт-Петербурга. Прием заявок на терапию препаратом продолжается.
Владислав из Ленинградской области стал одним из первых, кто получил уникальный препарат генной терапии «Элевидис». Закупить его удалось благодаря фонду «Круг добра».
Лекарство необходимо для лечения мышечной дистрофии Дюшена, а его стоимость составляет около 3 млн долларов.
На данный момент 50 детей из разных регионов России уже обеспечены лекарственным средством «Элевидис», которое было предоставлено фондом «Круг добра». В их числе Степан и Дмитрий из Санкт-Петербурга. Прием заявок на терапию препаратом продолжается.
"We're seeing really dramatic moves, and it's all really tied to Ukraine right now, and in a secondary way, in terms of interest rates," Octavio Marenzi, CEO of Opimas, told Yahoo Finance Live on Thursday. "This war in Ukraine is going to give the Fed the ammunition, the cover that it needs, to not raise interest rates too quickly. And I think Jay Powell is a very tepid sort of inflation fighter and he's not going to do as much as he needs to do to get that under control. And this seems like an excuse to kick the can further down the road still and not do too much too soon." After fleeing Russia, the brothers founded Telegram as a way to communicate outside the Kremlin's orbit. They now run it from Dubai, and Pavel Durov says it has more than 500 million monthly active users. Emerson Brooking, a disinformation expert at the Atlantic Council's Digital Forensic Research Lab, said: "Back in the Wild West period of content moderation, like 2014 or 2015, maybe they could have gotten away with it, but it stands in marked contrast with how other companies run themselves today." Given the pro-privacy stance of the platform, it’s taken as a given that it’ll be used for a number of reasons, not all of them good. And Telegram has been attached to a fair few scandals related to terrorism, sexual exploitation and crime. Back in 2015, Vox described Telegram as “ISIS’ app of choice,” saying that the platform’s real use is the ability to use channels to distribute material to large groups at once. Telegram has acted to remove public channels affiliated with terrorism, but Pavel Durov reiterated that he had no business snooping on private conversations. The company maintains that it cannot act against individual or group chats, which are “private amongst their participants,” but it will respond to requests in relation to sticker sets, channels and bots which are publicly available. During the invasion of Ukraine, Pavel Durov has wrestled with this issue a lot more prominently than he has before. Channels like Donbass Insider and Bellum Acta, as reported by Foreign Policy, started pumping out pro-Russian propaganda as the invasion began. So much so that the Ukrainian National Security and Defense Council issued a statement labeling which accounts are Russian-backed. Ukrainian officials, in potential violation of the Geneva Convention, have shared imagery of dead and captured Russian soldiers on the platform.
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