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Владислав из Ленинградской области стал одним из первых, кто получил уникальный препарат генной терапии «Элевидис». Закупить его удалось благодаря фонду «Круг добра».
Лекарство необходимо для лечения мышечной дистрофии Дюшена, а его стоимость составляет около 3 млн долларов.
На данный момент 50 детей из разных регионов России уже обеспечены лекарственным средством «Элевидис», которое было предоставлено фондом «Круг добра». В их числе Степан и Дмитрий из Санкт-Петербурга. Прием заявок на терапию препаратом продолжается.
Владислав из Ленинградской области стал одним из первых, кто получил уникальный препарат генной терапии «Элевидис». Закупить его удалось благодаря фонду «Круг добра».
Лекарство необходимо для лечения мышечной дистрофии Дюшена, а его стоимость составляет около 3 млн долларов.
На данный момент 50 детей из разных регионов России уже обеспечены лекарственным средством «Элевидис», которое было предоставлено фондом «Круг добра». В их числе Степан и Дмитрий из Санкт-Петербурга. Прием заявок на терапию препаратом продолжается.
This ability to mix the public and the private, as well as the ability to use bots to engage with users has proved to be problematic. In early 2021, a database selling phone numbers pulled from Facebook was selling numbers for $20 per lookup. Similarly, security researchers found a network of deepfake bots on the platform that were generating images of people submitted by users to create non-consensual imagery, some of which involved children. Friday’s performance was part of a larger shift. For the week, the Dow, S&P 500 and Nasdaq fell 2%, 2.9%, and 3.5%, respectively. Some people used the platform to organize ahead of the storming of the U.S. Capitol in January 2021, and last month Senator Mark Warner sent a letter to Durov urging him to curb Russian information operations on Telegram. Overall, extreme levels of fear in the market seems to have morphed into something more resembling concern. For example, the Cboe Volatility Index fell from its 2022 peak of 36, which it hit Monday, to around 30 on Friday, a sign of easing tensions. Meanwhile, while the price of WTI crude oil slipped from Sunday’s multiyear high $130 of barrel to $109 a pop. Markets have been expecting heavy restrictions on Russian oil, some of which the U.S. has already imposed, and that would reduce the global supply and bring about even more burdensome inflation. Given the pro-privacy stance of the platform, it’s taken as a given that it’ll be used for a number of reasons, not all of them good. And Telegram has been attached to a fair few scandals related to terrorism, sexual exploitation and crime. Back in 2015, Vox described Telegram as “ISIS’ app of choice,” saying that the platform’s real use is the ability to use channels to distribute material to large groups at once. Telegram has acted to remove public channels affiliated with terrorism, but Pavel Durov reiterated that he had no business snooping on private conversations.
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