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Владислав из Ленинградской области стал одним из первых, кто получил уникальный препарат генной терапии «Элевидис». Закупить его удалось благодаря фонду «Круг добра».
Лекарство необходимо для лечения мышечной дистрофии Дюшена, а его стоимость составляет около 3 млн долларов.
На данный момент 50 детей из разных регионов России уже обеспечены лекарственным средством «Элевидис», которое было предоставлено фондом «Круг добра». В их числе Степан и Дмитрий из Санкт-Петербурга. Прием заявок на терапию препаратом продолжается.
Владислав из Ленинградской области стал одним из первых, кто получил уникальный препарат генной терапии «Элевидис». Закупить его удалось благодаря фонду «Круг добра».
Лекарство необходимо для лечения мышечной дистрофии Дюшена, а его стоимость составляет около 3 млн долларов.
На данный момент 50 детей из разных регионов России уже обеспечены лекарственным средством «Элевидис», которое было предоставлено фондом «Круг добра». В их числе Степан и Дмитрий из Санкт-Петербурга. Прием заявок на терапию препаратом продолжается.
Right now the digital security needs of Russians and Ukrainians are very different, and they lead to very different caveats about how to mitigate the risks associated with using Telegram. For Ukrainians in Ukraine, whose physical safety is at risk because they are in a war zone, digital security is probably not their highest priority. They may value access to news and communication with their loved ones over making sure that all of their communications are encrypted in such a manner that they are indecipherable to Telegram, its employees, or governments with court orders. "Someone posing as a Ukrainian citizen just joins the chat and starts spreading misinformation, or gathers data, like the location of shelters," Tsekhanovska said, noting how false messages have urged Ukrainians to turn off their phones at a specific time of night, citing cybersafety. There was another possible development: Reuters also reported that Ukraine said that Belarus could soon join the invasion of Ukraine. However, the AFP, citing a Pentagon official, said the U.S. hasn’t yet seen evidence that Belarusian troops are in Ukraine. But Telegram says people want to keep their chat history when they get a new phone, and they like having a data backup that will sync their chats across multiple devices. And that is why they let people choose whether they want their messages to be encrypted or not. When not turned on, though, chats are stored on Telegram's services, which are scattered throughout the world. But it has "disclosed 0 bytes of user data to third parties, including governments," Telegram states on its website. The company maintains that it cannot act against individual or group chats, which are “private amongst their participants,” but it will respond to requests in relation to sticker sets, channels and bots which are publicly available. During the invasion of Ukraine, Pavel Durov has wrestled with this issue a lot more prominently than he has before. Channels like Donbass Insider and Bellum Acta, as reported by Foreign Policy, started pumping out pro-Russian propaganda as the invasion began. So much so that the Ukrainian National Security and Defense Council issued a statement labeling which accounts are Russian-backed. Ukrainian officials, in potential violation of the Geneva Convention, have shared imagery of dead and captured Russian soldiers on the platform.
from sa
